M.E. Myself and I: What Do You Do at Home?

It’s been a while since I wrote anything M.E. related but after a trip to relatives I thought this would be a good time. This question, along with ‘do you go out much?’ and ‘do you have any friends you go out with?’ are innocent enough questions, at least in this case they were, but they’re some of those that are so hard to answer when you’ve got a chronic illness. It doesn’t help that elderly relatives can forget they’ve asked so I’ve been asked repeatedly on the same day which doesn’t exactly help to just brush it off.

I guess that’s the thing, it’s harder to brush these off when you don’t actually so much. In everyday life I tend to think I’ve achieved quite a bit if I’ve managed to get my blog posts up for the week, gone for walks, done some volunteering and maybe get some jewellery making done. Looking at each day individually most of the time is spent what would probably be classed as ‘not doing much’ which translates to resting in chronic illness terms. It’s harder to feel like you’re acheiving something when you look at it like that and easy to forget how much improvement there has been over the past few years, even the last year or six months.

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A bit of an update

Hey guys, I thought I’d do a bit of an update as posts may be a bit off schedule the next couple of weeks. Two weeks ago I had an operation to remove a big cyst and so these past two weeks posts have been scheduled and I hoped to be better by now so I could do my posts like I was before. Sorry if I’ve taken a while to reply to comments and I know I am way behind on reading blog posts but my concentration is getting better again. I think it’s more my ME knock on effect rather than the operation that’s getting in the way now as I was feeling so much better a couple of days after the operation than I have for years so hopefully this means I’ll actually have more energy and be able to spend more time on the blog. I might even get back to the five posts a week and more of a schedule for the different types of posts with five a week like I did the beginning of last year. That’s the goal anyway.

On the plus side I’ve had to relax and not do anything much and the weather has been nice so I have been catching up on my reading and the list of to read books outside. Though I highly doubt I’ll actually manage a book a week and have read 52 by the end of the year, maybe I should stop setting it as a goal but I do want o read more and it’s one way of doing that for me.

It has also taught me that I can actually do more scheduled posts, I’m just never organised to do this and forget after a few weeks but I’ll try to get into the habit more. I always used to worry that if I did them too​ far in advance they’d get out of date or I’d have new things arrive and mess the schedules up.

Also I do have some ideas for more health related posts but not sure how many people would be interested in them. I just is I’ve answered questions in the past about geberal anaesthetic and ME so might post about that as I’ve had a couple of experiences that were very different and I know before the surgery I was searching for information on the internet about things I’d need to take and remember so might do posts on that. I don’t know. Would any of you guys enjoy interested in those sorts of posts? I feel like I haven’t done many ME and health related posts recently.

Anyway, this isn’t much of a post but I wanted to do a bit of an update and explain why if I don’t post for a bit. Hope you’re all well and that the weather’s good wherever you are. Our early summer seems to have disappeared again here in the UK.

It’s Spring Cleaning Time Again

This time of year I always get that Spring Clean, time to declutter everything, feeling and this year I finally decided that it was time to admit that my jewellery and clothes were in dire need or a sort out. Quite a few of my clothes haven’t fitted me that well for the past year, since a fun side effect of the medication I’m on made me gain quite a bit of weight around my middle, and oddly my feet too, and changed my body shape. It’s a bit like learning how to dress myself and what suits me all over again, but that’s a topic for another post. 

Anyway, I decided that I would try everything I own on and anything that doesn’t fit me but is still either new (I did a bit of an overhaul a week before I started the mads so haven’t worn some of it) or that I still loved got put in bags and is now stored under the bed in the spare room. It certainly feels better having a wardrobe full of clothes I can actually fit into rather than one bulging at the seems because it has two sizes of everything! 

My jewellery was mainly a case of having things I’ve loved for years but not worn them as they aren’t the style I go for any more, though I forgot to photograph what I got rid of annoyingly. Makeup will probably become a few posts, I always love reading and watching decluttering things other people do so they’ll go up when I finish that.

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Low-GL Diet: 8 Week Update

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Not sure this picture has anything to do with the post but I like it, and what do you put as a picture for these?

I started the Low-GL (Glycaemic Load) diet eight weeks ago, there’s a post with a bit more about it here if you want more information on what it actually is. I have to say that when I hear the word diet I automatically think of not being able to eat much, feeling hungry or avoiding carbs but I have not found that I missed anything in this diet.

The main idea is to have the right proportions of a more carb heavy food, protein and a lot of low carb veg so it turns the carb into a more slow release sugar rather than having the peaks and lows that I was having before.

I started this as it’s a bit of a different version of the Low-GI (Glycaemic Index) diet that was recommended by an ME specialist a couple of years ago. I tried Low GI and I just couldn’t work it out so ended up giving up as it didn’t seem to work but it may be more to do with me failing to get it right. With my ME one of the symptoms I have is post prandial hypoglycaemia, though I don’t have diabetes my blood sugar drops low a few hours after eating so this diet was recommended to even that out.

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I Don’t Do New Year’s Resolutions But…

For ages I would make new year’s resolutions but there are only so many times you can have learn to drive on there but kit be able to achieve it purely because of health reasons before it gets a bit demoralising. 

Instead I have decided to make goals, I did his last year and I failed most due to a mix of health, mediation side effects or other family member’s health issues that were more important to think about but since having ME I have definitely learnt that goals should be flexible as being to rigid with them leads to disappointment and it’s just not how chronic illnesses work, in my experience anyway. Continue reading

ME, Myself and I: Computer Games

I think one of my first posts was about computer games and I haven’t really done much about them since. I’m not sure how well they fit into my blog but as computers and technology in general is something I love writing about and games are a great escape they’ll stay in here now and then. I have to say that I am one of those people who sees games, wants them, buys them on Steam and then plays them for a few hours and they get forgotten. There are various reasons for that but one of the big ones is my ME and the energy it takes to actually concentrate and play. Add in the fact that I don’t really have any friends who play computer games, actually not many friends in general due to being housebound most of the time anyway, and that some of my favourites that have been started are ones that my computer can’t handle and my list of games I can play becomes limited.

I wish I could play more computer games, I have more than enough time for it even with starting the business, blogging and volunteering for the website I do which is probably the opposite of most people. I like how you can escape into another world, whether the game is remotely realistic or not, even the most pixelated and outdated games can be a great escape. I kind of wish I could find a good Dizzy version (the 80s game with the egg) as I loved the one I had even if I did get stuck at the same place for so long. I did find a version of the old Lion King, Aladdin and Jungle Book games we had that took like ten floppy discs each back in the day. I think it’s the nostalgia in those cases, they’re games I played when I was growing up before I got ill so it doesn’t matter how bad they might be they’ll always be amazing to me.

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Aren’t Computers Great?

Isn’t it great when your computer has managed to avoid updating to Windows 10 and then, on the last day it can be done it decides that it will force me to do this? Then it takes nearly nine hours to download and install the update and half of the apps I had on the computer are no longer compatible. Tomorrow is going to be a fun day of sitting here installing things again and trying to work out if I need to find replacements for some of them. Sorry if this seems a bit rantish, I’ve been sat with the computer for ages while it works things out and ‘s just a bit frustrating at times. Anyway, no real post today as my computer is not working that well, I’m just crossing my finger it’ll be good for Monday, if not then you know why there isn’t a post!

It also doesn’t help that the post I originally had for today, and spent a while writing and getting the photos on the computer, is for a product that is no longer available even though it was letting me add it to the basket this afternoon. I decided not to post it as it was for the Too Faced Romantic Eye palette and if you can’t even get it any more I’m not sure if I should post about it, it’s not really new. Unless you guys want to read it anyway, in case it becomes available again at some point. It’s one of the ones in my palettes collection I was going through and reviewing but it got pushed back even though I had it all planned before Christmas. Looks like I shouldn’t have put it off, lesson learned I guess!

It’s weird how, now I’ve been doing three posts a week on Monday, Wednesday and Friday (and others in between sometimes) it just feels wrong not posting on one of the three main days even if there is already a third post this week. Does anyone else find that? Like I couldn’t relax unless I did a post. I will work on getting spares ready in case of emergencies like today, and make sure they’re actually still available.

Sorry for any typos, I’m on my phone and I’m not the best at picking up spelling on here, I might delete this next week if it’s all fixed then.

Have a good weekend 🙂

 

ME, Myself and I (kind of): I’m Melting 

I think it’s a fairly universal thing with ME but this recent heat in the UK is really not helping my symptoms. It seems to make everything worse so I’ve ended up finding ways to cope with the heat. I did a pot on this last year so I’ll link to that post that has tips and ideas on what to do to make the heat more bearable, it’s here if you want to read those ideas. 

The past few days has mainly been either staying inside with the windows open but curtains closed and my hot water bottle full of ice or in the shade in the garden with the paddling pool we bought yesterday. If you don’t have one and you have the energy to sit outside I definitely recommend this for when it’s this hot. It dies have to be big, just one you can sit in would be enough as it makes a surprising difference and it’s nice and cooling to even put your feet in it in the evening and imagine you’re somewhere abroad. 

As my brain is kind of foggy at the moment I thought I’d do today’s post as part ME post and part blog like thing and post a few photos from the past week, mostly from today actually. I think I have posted most of these to my Instagram so if you follow me on there sorry for double posting, I won’t do it often I just liked these photos. I was thinking about doing a my week in photos type post on the weekend, not things from Instagram but other photos, but not sure as I don’t really do much most of the time. Continue reading

My Weekend in Wales

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I keep meaning to do some more bloggy blog posts but I hardly ever have anything to actually blog about so now I actually do I thought I’d finally get one done. I think the last one I did was probably around Christmas time, I will try to make sure the next one doesn’t have as big a gap in between.

This weekend we went down to South Wales to visit my grandparents, it’s been a while since I’ve seen them and we had a bit of a road trip with my sister and mum. I live in the midlands in England and pretty much the furthest point away from any coast you can get in the UK so it’s also nice to get to go to the beach and, for the first time in ages, the tide was actually out when we went.

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Something beauty related in this post, I thought I’d include it in case anyone is interested, but the August edition of Marie Claire with Blake Lively on here in the UK has a Benefit Ready, Set, Brow! included as its free gift. It’s their invisible shaping and setting gel for brows and I think it’s the full sized version so it’s worth picking up the magazine if you want to give this a go. For the £3.99 the magazine costs it’s a pretty good price for a Benefit product. I think it’s the only products available though there are a few new ones in the Benefit brow product range. I don’t really do much with my brows but I’ll be having a play around with this and seeing how well it works.

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Open University Graduation in Ely

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This weekend, on June 4th, after studying with the Open University for six years I finally went to the degree ceremony (the OU doesn’t seem to call them Graduation ceremonies as we graduate when we get the degree in the post). The local one to me was in Ely Cathedral and I think it’s definitely the most impressive setting of the ones I’ve seen when it comes to these ceremonies. We’d been there a few years ago to have a look around after finding out about it but it somehow seemed even bigger on the day.

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