It’s been a while since I wrote anything M.E. related but after a trip to relatives I thought this would be a good time. This question, along with ‘do you go out much?’ and ‘do you have any friends you go out with?’ are innocent enough questions, at least in this case they were, but they’re some of those that are so hard to answer when you’ve got a chronic illness. It doesn’t help that elderly relatives can forget they’ve asked so I’ve been asked repeatedly on the same day which doesn’t exactly help to just brush it off.
I guess that’s the thing, it’s harder to brush these off when you don’t actually so much. In everyday life I tend to think I’ve achieved quite a bit if I’ve managed to get my blog posts up for the week, gone for walks, done some volunteering and maybe get some jewellery making done. Looking at each day individually most of the time is spent what would probably be classed as ‘not doing much’ which translates to resting in chronic illness terms. It’s harder to feel like you’re acheiving something when you look at it like that and easy to forget how much improvement there has been over the past few years, even the last year or six months.
Possibly a bit stereotypical with a field of wheat (or barley) but I like it and it has a link to the post, in a way.
To be honest the past three months have kind of gone in a a bit of a blur. With the operation and recovery I realised that recently I’ve lost some of the motivation I had. It started with the whole build up, feeling rubbish and then the four or five weeks where I was told not to do too much but it’s sort of stuck with me. I was so motivated, I have a list of posts I had planned to write and schedule for my recovery and I realised that I only ended up doing a few other them and then doing others instead and my whole organisation has fallen to the side. It’s not just my blog that it’s happened with but I know noticed I’d got down to 2 posts a week with not real schedule and it’s given me a bit of a kick up the backside to try and get my motivation back.
There are a few ways I’ve found in the past that helped so I thought I’d do a post on it, we all go through patches like this so I thought it would be interesting to see if there are any of the things I do that you guys use to get back your motivation or if there’s anything you do that’s different that I’d never thought of.
Apparently my computer doesn’t want to go online again. Have been trying since this morning and the annoying exclamation mark next to the WiFi symbol is back. I’m crossing my fingers it’s another windows update problem like last time rather than my computer actually needing fixing but I might not be posting anything I had planned this week. I’ll either go back to iPad posts or maybe wait until the computer is back up and running. So annoying when today I actually have the posts done I wanted to schedule and I’m organised for once. I guess it does mean I have my posts ready for whenever it decides it want to cooperate again!
Just wondering, have any of you guys got this problem? Last time it happened I found out a day or two later it was a problem with a Windows update and some computers, I guess it could be the same again. I just seem to have a lucky computer that doesn’t get on with updates.
Anyway, that’s all this post is about. Hope you guys are enjoying the weather and staying cool enough if you’re in the UK with this heat wave!
Hey guys, I thought I’d do a bit of an update as posts may be a bit off schedule the next couple of weeks. Two weeks ago I had an operation to remove a big cyst and so these past two weeks posts have been scheduled and I hoped to be better by now so I could do my posts like I was before. Sorry if I’ve taken a while to reply to comments and I know I am way behind on reading blog posts but my concentration is getting better again. I think it’s more my ME knock on effect rather than the operation that’s getting in the way now as I was feeling so much better a couple of days after the operation than I have for years so hopefully this means I’ll actually have more energy and be able to spend more time on the blog. I might even get back to the five posts a week and more of a schedule for the different types of posts with five a week like I did the beginning of last year. That’s the goal anyway.
On the plus side I’ve had to relax and not do anything much and the weather has been nice so I have been catching up on my reading and the list of to read books outside. Though I highly doubt I’ll actually manage a book a week and have read 52 by the end of the year, maybe I should stop setting it as a goal but I do want o read more and it’s one way of doing that for me.
It has also taught me that I can actually do more scheduled posts, I’m just never organised to do this and forget after a few weeks but I’ll try to get into the habit more. I always used to worry that if I did them too far in advance they’d get out of date or I’d have new things arrive and mess the schedules up.
Also I do have some ideas for more health related posts but not sure how many people would be interested in them. I just is I’ve answered questions in the past about geberal anaesthetic and ME so might post about that as I’ve had a couple of experiences that were very different and I know before the surgery I was searching for information on the internet about things I’d need to take and remember so might do posts on that. I don’t know. Would any of you guys enjoy interested in those sorts of posts? I feel like I haven’t done many ME and health related posts recently.
Anyway, this isn’t much of a post but I wanted to do a bit of an update and explain why if I don’t post for a bit. Hope you’re all well and that the weather’s good wherever you are. Our early summer seems to have disappeared again here in the UK.
Sorry guys, I just realised today that, for some reason my Photoshop has been saving my photos as gifs rather than jpegs meaning they look a bit odds don’t have the same quality as they did before I started using it again. I’m not going to redo the posts I’ve already done, though I may replace the photos in the most recent one, but I’ll be going through and redoing all the pictures for the posts I haven’t posted yet. It’s odd how they looked completely fine on Photoshop, even opening older ones to edit, but on here they just look weird, or maybe that’s just me.
Anyway, not much of a reason for this post except hopefully the picture quality will be better again and I only just noticed it was weird in the first place! I guess that’s a problem with mainly using my phone to check up on my blog. There should be a post up tonight, so back to your regular scheduled blogging… kind of. I’m a bit off on the days this week.
This time of year I always get that Spring Clean, time to declutter everything, feeling and this year I finally decided that it was time to admit that my jewellery and clothes were in dire need or a sort out. Quite a few of my clothes haven’t fitted me that well for the past year, since a fun side effect of the medication I’m on made me gain quite a bit of weight around my middle, and oddly my feet too, and changed my body shape. It’s a bit like learning how to dress myself and what suits me all over again, but that’s a topic for another post.
Anyway, I decided that I would try everything I own on and anything that doesn’t fit me but is still either new (I did a bit of an overhaul a week before I started the mads so haven’t worn some of it) or that I still loved got put in bags and is now stored under the bed in the spare room. It certainly feels better having a wardrobe full of clothes I can actually fit into rather than one bulging at the seems because it has two sizes of everything!
My jewellery was mainly a case of having things I’ve loved for years but not worn them as they aren’t the style I go for any more, though I forgot to photograph what I got rid of annoyingly. Makeup will probably become a few posts, I always love reading and watching decluttering things other people do so they’ll go up when I finish that.
This is a bit late, it’s definitely taking me a while to recover from Christmas this year, but I wanted to post it as I like reading what other people get for Christmas. It almost feels like I should have titled this the year of Soap and Glory or something as I have quite a bit from them. Though I do often as for the big set when it’s at half price and they last me till next Christmas, I’m not sure how much Soap and Glory I’ve actually bought the past four or five years.
For ages I would make new year’s resolutions but there are only so many times you can have learn to drive on there but kit be able to achieve it purely because of health reasons before it gets a bit demoralising.
Instead I have decided to make goals, I did his last year and I failed most due to a mix of health, mediation side effects or other family member’s health issues that were more important to think about but since having ME I have definitely learnt that goals should be flexible as being to rigid with them leads to disappointment and it’s just not how chronic illnesses work, in my experience anyway. Continue reading
Happy New Year everyone! I hope 2017 brings you everything you want and you’ve had a fun New Years Eve, whether it’s out with others, staying in at home to see in the new year or falling asleep.
I don’t know what happened to 2016, not the best year as a world or me personally but it did see my blog grow and I know what I’m doing with it (kind of). I promise to get better at blogging next year but that’s for another post. Basically have a great 2017!
Also, the nails in the photo used Red Carpet Manicure Aquamarine, which I got for Christmas and wanted to play with despite originally planing a NYE themed nail look. The nail art uses my much loved Rio Professional Nail Art Pens in white and light blue. I love how sparkly the RCM colour is and my snowflakes actually turned out ok.
The time around Christmas in general is really draining, I think that probably goes for most people anyway, so energy is definitely at a premium and after everything leading up to it I don’t have anything left when it comes to the boxing day sales. At the same time I do live sales shopping, and not just for the amazing deals you can find, it’s always been a bit if a tradition to go sales shopping title he nearest city the day after boxing day. Boxing day itself is a stay at home, relax and just watch TV kind of day anyway for my family, the crowds would out me off even if I was healthy unless there was something I really wanted.
Since having M.E. I have been surprised how much I do miss the sales shopping and have found some ways to still enjoy it so thought I’d post some of these tips, even if it’s a bit late for some since the sales are probably half empty in some places (the Lush sale in the UK seemed to sell out in boxing day itself). Continue reading